Building a Progressive-Situational Model of Post-Diagnosis Information Seeking for Parents of Individuals with Down syndrome Public Deposited

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  • Gibson, Amelia
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    • Affiliation: School of Information and Library Science
  • This grounded theory study used in-depth, semi-structured interview to examine the information-seeking behaviors of 35 parents of children with Down syndrome. Emergent themes include a progressive pattern of behavior including information overload and avoidance, passive attention, and active information seeking; varying preferences between tacit and explicit information at different stages; and selection of information channels and sources that varied based on personal and situational constraints. Based on the findings, the author proposes a progressive model of health information seeking and a framework for using this model to collect data in practice. The author also discusses the practical and theoretical implications of a responsive, progressive approach to understanding parents’ health information–seeking behavior.
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  • Article
Journal title
  • Global Qualitative Nursing Research
Journal volume
  • 3
  • English
  • Preprint

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