Designing a web-application to support home-based care of childhood CKD stages 3-5: Qualitative study of family and professional preferences Public Deposited

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Creator
  • Swallow, Veronica M
    • Other Affiliation: School of Nursing, Midwifery & Social Work, University of Manchester, University of Manchester, Oxford Road, Manchester M13 9PL, UK
  • Hall, Andrew G
    • Other Affiliation: School of Nursing, Midwifery & Social Work, University of Manchester, University of Manchester, Oxford Road, Manchester M13 9PL, UK
  • Smith, Trish
    • Other Affiliation: Royal Manchester Children’s Hospital, Central Manchester University Hospitals NHS Foundation Trust, Oxford Road, Manchester M13 9WL, UK
  • Hanif, Noreen
    • Other Affiliation: Royal Manchester Children’s Hospital, Central Manchester University Hospitals NHS Foundation Trust, Oxford Road, Manchester M13 9WL, UK
  • Santacroce, Sheila
    • Affiliation: School of Nursing
  • Webb, Nicholas JA
    • Other Affiliation: Royal Manchester Children’s Hospital, Central Manchester University Hospitals NHS Foundation Trust, Oxford Road, Manchester M13 9WL, UK
  • Carolan, Ian
    • Other Affiliation: School of Nursing, Midwifery & Social Work, University of Manchester, University of Manchester, Oxford Road, Manchester M13 9PL, UK; Royal Manchester Children’s Hospital, Central Manchester University Hospitals NHS Foundation Trust, Oxford Road, Manchester M13 9WL, UK
Abstract
  • Abstract Background There is a lack of online, evidence-based information and resources to support home-based care of childhood CKD stages 3-5. Methods Qualitative interviews were undertaken with parents, patients and professionals to explore their views on content of the proposed online parent information and support (OPIS) web-application. Data were analysed using Framework Analysis, guided by the concept of Self-efficacy. Results 32 parents, 26 patients and 12 professionals were interviewed. All groups wanted an application that explains, demonstrates, and enables parental clinical care-giving, with condition-specific, continously available, reliable, accessible material and a closed communication system to enable contact between families living with CKD. Professionals advocated a regularly updated application to empower parents to make informed health-care decisions. To address these requirements, key web-application components were defined as: (i) Clinical care-giving support (information on treatment regimens, video-learning tools, condition-specific cartoons/puzzles, and a question and answer area) and (ii) Psychosocial support for care-giving (social-networking, case studies, managing stress, and enhancing families’ health-care experiences). Conclusions Developing a web-application that meets parents’ information and support needs will maximise its utility, thereby augmenting parents’ self-efficacy for CKD caregiving, and optimising outcomes. Self-efficacy theory provides a schema for how parents’ self-efficacy beliefs about management of their child’s CKD could potentially be promoted by OPIS.
Date of publication
Identifier
  • 24548640
  • doi:10.1186/1471-2369-15-34
Resource type
  • Article
Rights statement
  • In Copyright
Rights holder
  • Veronica M Swallow et al.; licensee BioMed Central Ltd.
License
Journal title
  • BMC Nephrology
Journal volume
  • 15
Journal issue
  • 1
Page start
  • 34
Language
  • English
Is the article or chapter peer-reviewed?
  • Yes
ISSN
  • 1471-2369
Bibliographic citation
  • BMC Nephrology. 2014 Feb 18;15(1):34
Access
  • Open Access
Publisher
  • BioMed Central Ltd
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