Trekking Through Transition: An Exploration of Transition Readiness in Adolescents with Sickle Cell Disease and a Self-Reflection of My Transition

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  • February 26, 2019
Creator
  • Fajardo, Marco Lorenzo
    • Affiliation: School of Nursing
Abstract
  • Because of medical advances in treatment, the lifespan of patients with sickle cell disease (SCD) has extended well into adulthood. As a result, healthcare transition (HCT), the process of moving from pediatric to adult care, has emerged as an important developmental period for adolescents and young adults (AYAs) with SCD. Self-management is a transition readiness factor incorporated in many transition programs and is factored into multiple SCD care theories. As part of a larger project, this pilot study examined factors associated with transition readiness using the 10 domains of the TRxANSITION Scale: Type of Chronic Health Condition, Rx (Treatment and Medications), Adherence to Medication, Nutrition, Self-Management, Issues of Reproduction, Trade/School, Insurance, Ongoing Support, and New Health Care Providers. In an existing dataset of 29 African American AYAs with SCD, a cross-sectional descriptive design and regression analysis was used to determine significant transition factors. Of the 10 domains, Self-Management (67%) and Insurance (73%) accounted for the highest amount of variance within the Total Transition Score at a significance of <.01. Results support the importance of self-management in AYAs’ transition readiness while also implicating targets for interventions to address this need. Due to the emphasis of self-care on the transition process, this project includes personal reflections regarding the transition from student nurse to new graduate nurse.
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Rights statement
  • In Copyright
Note
  • Funding: None
Advisor
  • Jenerette, Coretta
Degree
  • Bachelor of Science
Academic concentration
  • Nursing
Honors level
  • Honors
Degree granting institution
  • University of North Carolina at Chapel Hill
Graduation year
  • 2017
Language
  • English

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