Assessing the Effects of Institutional Review Boards on Social Science Data Archiving in Digital Repositories
Public Deposited- Last Modified
- February 28, 2019
- Creator
-
Guss, Samantha A.
- Affiliation: School of Information and Library Science
- Abstract
- This study addresses the intersection of digital repositories and archives and institutional review boards (IRBs) with regard to opinions on data reuse from the IRB members themselves and researchers in social and behavioral science disciplines whose research requires IRB approval. The issue was examined from several perspectives, utilizing a survey of social and behavioral science researchers, interviews with IRB members, and an analysis of the language used in blank Informed Consent forms from previously approved studies related to potential data reuse. Combined, the data gathered provides multi-faceted insight into these two groups, especially regarding IRB application language and subjects' informed consent. It recommends early intervention by repositories, open discussion within Institutional Review Boards on data archiving in social and behavioral science, increased guidance by IRBs and repositories for applicants, continued education, and increased transparency and communication among IRBs and researchers.
- Date of publication
- April 2009
- Subject
- DOI
- Resource type
- Rights statement
- In Copyright
- Advisor
- Tibbo, Helen R.
- Degree granting institution
- University of North Carolina at Chapel Hill
- Language
- Extent
- 61
- Deposit record
- abb1808a-3405-4d7b-866b-f35807dc08b2
- Access right
- Open access
- Date uploaded
- March 6, 2013
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