A Qualitative Meta-Synthesis of Family Experiences and Needs Regarding Health Care of Newly Diagnosed Children with Traumatic Brain Injury in the Acute Care Setting

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  • February 26, 2019
Creator
  • Hilton, Tiffani
    • Affiliation: School of Nursing
Abstract
  • Children with moderate to severe traumatic brain injury (TBI) are often represented by their parents, who play a vital role in supporting their child. Minimal research captures the parents’ experiences in the acute care setting, leading to a lack of evidence-based knowledge regarding the supportive needs they wish were available. This qualitative synthesis used the PRISMA guidelines to search for and assimilate peer-reviewed research on early parenting needs in the acute care setting following moderate to severe TBI. A total of 1188 studies were screened after searching three scientific databases (PubMed; CINAHL; PsycINFO). Inclusion criteria involved: (a) children < twenty-one years of age; (b) accidental moderate to severe TBI; (c) acute inpatient setting; (d) parent(s) views on support needs; (f) published within last eight years; and, (g) written in English. Eight articles met the inclusion criteria, and the following major themes were noted: emotional family burden, the child’s protection from physical and emotional harm, the desire for parents’ conservation of energy, the demand for frequent and thorough support and communication, and parents’ varying coping abilities. Findings emphasize that a lack of understanding of early parenting needs following moderate to severe TBI can lead to substantial communication and support barriers. These obstacles gravely interfere with the distributed knowledge and physical, cognitive, or emotional assistance provided to newly informed parents. We used this information to inform the provision of future support materials for families. Prospective research needs be conducted to reveal unidentified parent(s) needs of newly diagnosed children with TBI.
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  • In Copyright
Advisor
  • Roscigno, Cecelia
Degree
  • Bachelor of Science
Academic concentration
  • Nursing
Honors level
  • Honors
Degree granting institution
  • University of North Carolina at Chapel Hill
Graduation year
  • 2018
Language
  • English

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